Hi Lola
I have Lupus too. One day, I can be feeling fine and making lots of plans for the future. The next day, my meds don't seem to work, my ankles swell up like little balloons and I'm wondering if I have kidney damage from the Lupus or the Lupus meds. A few days later, I seem fine again. The one thing about Lupus is, you really have to take it one day at a time, because you don't know what tomorrow will bring.
I find it helpful to meditate, to stay in the present moment, not to look into the future and think of all the worst case scenarios possible. Also, not to get too attached to my plans or the outcomes. Lupus has taught me to try to find the joy in the present moment. Even when I was in a lot of pain, I found joy and comfort in the love and caring of compassionate people around me.
You are not selfish. You cry and are in pain because you have love and compassion for your sister and also for those other children who you saw, complete strangers, yet you felt for them. I have a mixed feeling for hospitals too. I was studying to be a nurse when I came down with Lupus. I hate going to hospitals too. The thing is, you meet the most amazing people there. Caring, compassionate, courageous. I'm talking about the staff, the patients, and the families who visit. These qualities tend to be contagious and rub off those touched by them. So, you usually come out better than when you went in.
Take it one day at a time. Don't forget to rest and take a break when you need it. Nothing will be gained from letting yourself sick or run down. If you need a break from the hospital and sick kids, take it. No guilt. You have to take care of yourself first before you have anything to give to others.
Hope this helps. Keep us posted on how your little sis is doing. You are an awesome sister!
Cog